This song kept going through my mind last night as I wrestled with surrender, what it means, what it looks like. There is more to come, when I am not chasing a 2 year old around, but for now, the song:
Blessings
--Count it all joy when you meet trials of various kinds, for you know that the testing of your faith produces endurance. James 1:2-3-- When I first started this blog I wondered what I would ever write about. We have since welcomed a child with spina bifida and another with Down syndrome. This has become a blog about our family and what it means to love and grow together even when life doesn't turn out how we planned it to be. We are learning to count it all joy.
Friday, September 23, 2011
Thursday, September 22, 2011
New Baby Joys And Woes
Baby and I had our 20 week ultrasound this morning. My midwife sent me to a perinatologist whom she works closely with. They have a wonderful, respectful professional relationship and it was a joy to be treated with the same respect.
The perinatologist spent over an hour going over every little bit of the baby, measuring and checking everything that could be measured and checked.
The positive results: 99.9% sure there is no spina bifida. The spine looks wonderful, head and brain are just what they should be, legs and feet straight and strong. The heart is doing well, measures just as it should and all the parts are pumping.
The negative results: there are two possible indicators of a chromosomal abnormality. The more serious of the two being that there is a high amount of fluid in both kidneys. This indicates either a blockage in the system somewhere or reflux, where the fluid is coming out but some of it is going back up again. This problem cannot be dealt with at all in utero and is something that we would deal with as we meet with the pediatrician after birth.
As we were leaving, the doctor reiterated to us that we have a very healthy baby and there is a 98% chance that we are going to have a perfectly normal, healthy child. But, now we are aware that there is a possibility of something more when the baby comes.
We ask for prayer for us as we process what this all means and for the baby. We know from prior experience that God will give us whatever we need for whatever we will face but it would be so wonderful not to have to face anything out of the ordinary. I guess we just ask for prayer that we would be prepared for whatever is to come and that God's healing hand would be on this little one.
And, in case your curious, it's another boy. :-)
The perinatologist spent over an hour going over every little bit of the baby, measuring and checking everything that could be measured and checked.
The positive results: 99.9% sure there is no spina bifida. The spine looks wonderful, head and brain are just what they should be, legs and feet straight and strong. The heart is doing well, measures just as it should and all the parts are pumping.
The negative results: there are two possible indicators of a chromosomal abnormality. The more serious of the two being that there is a high amount of fluid in both kidneys. This indicates either a blockage in the system somewhere or reflux, where the fluid is coming out but some of it is going back up again. This problem cannot be dealt with at all in utero and is something that we would deal with as we meet with the pediatrician after birth.
As we were leaving, the doctor reiterated to us that we have a very healthy baby and there is a 98% chance that we are going to have a perfectly normal, healthy child. But, now we are aware that there is a possibility of something more when the baby comes.
We ask for prayer for us as we process what this all means and for the baby. We know from prior experience that God will give us whatever we need for whatever we will face but it would be so wonderful not to have to face anything out of the ordinary. I guess we just ask for prayer that we would be prepared for whatever is to come and that God's healing hand would be on this little one.
And, in case your curious, it's another boy. :-)
Thursday, September 1, 2011
Another Milestone Today
The pictures of Damek's first day of school and video of Caedmon walking are still coming, I promise, but I just had to share that today Caedmon walked backwards, completely unassisted, for the first time today! He did it first in the water at aquatherapy but a few hours later, when Adam took him to pick Damek up from school, he said, 'Watch this!' and proceeded to turn around and walk backwards for six steps. It was actually more of a backward dance, our little crazy son. I wish we had video to show you.
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