--Count it all joy when you meet trials of various kinds, for you know that the testing of your faith produces endurance. James 1:2-3--
When I first started this blog I wondered what I would ever write about. We have since welcomed a child with spina bifida and another with Down syndrome. This has become a blog about our family and what it means to love and grow together even when life doesn't turn out how we planned it to be. We are learning to count it all joy.
Thursday, March 21, 2013
Happy World Down Syndrome Day!
This is a special day. A day to share with the rest of the world that a diagnosis of Down syndrome does not have to be scary. It doesn't mean that your family is going to be taken away from, as in no longer 'normal' or no longer hopeful or no longer having high expectations, rather that your family will gain from, as in joy, light, excitement, love, compassion, empathy, a fuller life.
The statistics are staggering. Only around 10% of those babies identified in utero as having Down syndrome live to see their birthday. Most of the 90% are aborted.
As a mother of a precious, amazing baby boy who also happens to have Down syndrome, I feel it is my job and duty to spread the word that these babies, these children, these people have so much to give. Their lives are worthwhile. Our world is a richer place because these children are in it.
The theme for this year's World Down Syndrome Day is 'Who I Am'. Take a moment to get to know someone in your community, your church, your family who has Down syndrome. It's amazing how things are much less frightening when you are able to put a face and a name to them.
This is Asher. He has Down syndrome.
And he's ready to party on this World Down Syndrome Day. Anyone want to dance?