Thursday, April 20, 2017

To Surgery Or Not To Surgery

Every year Caedmon goes in to check all his functions. They check to see if he has lost anything from the previous year. They check to see if everything is healthy. They check for reflux. They check to see if things are working as they should. They check to see if he is happy with his current state of things.

Everything looks great! Everything is healthy and looking as it should.

This year we had to bring up the fact that Caedmon has experienced more issues between catheterizing. He takes medicine to try to tighten up the sphincter muscles. We wondered if his dosage needed to be increased. 'No,' the doctor assured us.

Our only option right now would be an irreversible surgery that would involve taking gristle off a muscle and wrapping it around the sphincter, making the sphincter more difficult to get through to cath, which would make it probable that he would want/need another surgery that would put a port through his belly button into his bladder, which could increase the likelihood of infections and also could affect the health of his bladder and kidneys.

So, choose your kid's adventure: possible occasional embarrassment/maintain health/no surgery or surgery/possibly decline in health/more chance of not standing out in a crowd in the wrong way.

I hate the irreversible decisions. I hate that there aren't any better options for him right now.

I love that he is so healthy. I love that he hasn't seemed phased by it all yet.

I want him to be able to accept what he has. I want all my kids to be able to accept what they have. I want me to be able to accept what I have. It's not really different. It's just different issues we are all trying to work through.

You are an amazing work of art, son. So you tinkle a little when you laugh or when you run or when you're nervous. You know what? A lot of people do that who have average, normally functioning bodies. You are not alone.

We think we are going to hold off on this decision and let Caedmon make it when he is older. We are so grateful for the option to wait. We are grateful that he is healthy and strong. We are grateful that in this one area we do not need to make a spur of the moment decision.

We are slowly walking in the path of 'being thankful in all circumstances' 1 Thessalonians 5:18. Some circumstances are easier to be thankful for than others.

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